The overall mission of the Clinical Research and Care Unit (CRCU) is to advance multidisciplinary care and translational research for patients with amyotrophic lateral sclerosis (ALS) and related neurodegenerative disorders. This will be accomplished via a public-private partnership between Providence and St. Luke’s Rehabilitation Institute (as the clinical partner) and Washington State University, and Team Gleason. However, other health care systems may cooperate in this clinical effort in the future.
To meet the complex and rapidly changing needs of the patient with ALS, a multidisciplinary care model, based on the ALS practice parameters of the American Academy of Neurology, has emerged as the optimal treatment paradigm. This multidisciplinary care paradigm will also be used as an optimal care model for related neurodegenerative diseases that are the focus of the institute. The CRCU will use a medical home model with patients and caregivers meeting with multiple disciplines during an extended appointment, depending on patient needs.
Disciplines participating in the extended multidisciplinary appointment will rotate in and out of CRCU clinic space to provide care to the patient and caregiver.
St. Luke’s Rehabilitation Institute